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ME/CFS

I am really sorry to report that there are no supports in the Yukon directed at ME/CFS & Long Covid right now. Here are some sites that I found invaluable while navigating my illness.

 

Remember that you can always reach other ME/CFS LC suffers on the Not So Ordinary Facebook Group. 

Health Rising

What:   Health Rising is dedicated to providing timely, accurate information to people with chronic fatigue syndrome (ME/CFS) and fibromyalgia.

 

I visit this site when ever I am frustrated by the lack of care available to us. I come here to see all the effort that is being put into learning more about this horrid illness and develop enough hope to keep going. 

Who: People with ME/CFS and Long Covid

 

Where: Website

 

Cost: Free

Bateman Horne Center

What: Expanding hope, access, and informed care for people with ME/CFS, Long COVID, and related infection-associated chronic conditions. Check out their Clinical Care Guide It is very through.

 

Who: People with ME/CFS and Long Covid   

Where: Website

Cost: Free   

BC Women's Hospital 

What: Their Complex Chronic Disease Program page for ME/CFS has some great resources for you to give to your doctor regarding possible treatments. Their site has updated and finding this page is near impossible if you didn't know that it already existed.  Click HERE for the Clinical Protocols and medication handout that your doctor may be willing to follow.   

 

Who: People with ME/CFS and Long Covid     

 

Where: Website

 

Cost: Free   

CFIDS Self-Help 

What: In addition to being an excellent, evidence-based self-help resource, this website features stories from people who have ME/CFS or FM. They have a large online library of resources and offer free and low cost courses for friends/family members and those living with ME/CFS.    

 

Who: People with ME/CFS and Long Covid        

 

Where: Website

 

Cost: Free-$   

#ME Action

What: This is a grassroots international organization with different chapters around the world. They provide advocacy, resources, support and information to people living with ME, caregivers, healthcare providers, allies and the public. They have a comprehensive website with numerous resources, and organize advocacy and political awareness campaigns and activities (many through social media). The site has also recently launched a podcast.  

 

Who: People with ME/CFS and Long Covid        

 

Where: Website

 

Cost: Free   

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